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Jason Conway

Featured Patient Story

Jason Conway

View Jason’s latest video on how a Cardiac MRI was critical in his early diagnosis of amyloidosis

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My name is Jason Conway and I am a husband, father, teacher, and coach.  I am 48 years old and have lived a pretty normal, healthy life.  I have always been active and have taken care of myself.  I am also an amyloidosis patient.

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Latest News Story Headlines

2025 Winter Newsletter
Be sure to catch up on the latest happenings in our winter newsletter.
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Intellia Therapeutics Announces First Patient Dosed in the HAELO Phase 3 Study of NTLA-2002, an Investigational In Vivo CRISPR Gene Editing Treatment for Hereditary Angioedema

January 22, 2025

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Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy

Nov 25, 2024

− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −

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Calendar & Upcoming Events

Webinar: Mind Over Matter - Empower Your Healing Journey

 Webinar Session, Wednesday, Jan. 22nd, 2025 at 6 PM (ET)  Zoom Meeting

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Webinar: Living Fully with Amyloidosis: A Roadmap to Fulfillment

 Webinar Session, Wednesday, Jan. 29th, 2025 at 6 PM (ET)  Zoom Meeting

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Nashville Support Group Meeting

When: February 1st, 2025 1:00 am CT

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Amyloidosis Videos

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Updates in AL amyloidosis: Fast Forward in 2024!

Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY

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